Terrapinn's World Orphan Drug Congress Europe returns to RAI Amsterdam for 2026, with pre-congress workshops on followed by the main congress and exhibition on 27-28 October — a rare disease industry gathering spanning regulatory strategy, market access, cell and gene therapy and patient advocacy.
Dates and venue
- Pre-congress workshops: 26 October 2026
- Main congress and exhibition: 27-28 October 2026
- Venue: RAI Amsterdam (RAI Congress Centre), Amsterdam, the Netherlands
- Organizer: Terrapinn
What it covers
Terrapinn describes World Orphan Drug Congress Europe as the largest and most established event globally for orphan drugs and rare diseases. The organizer's draft agenda groups sessions under themes including access and pricing, manufacturing, cell and gene therapy, precision medicine, clinical development, real-world evidence, and investment and funding — the full session-level program was not available ahead of registration at verification time.
Who should attend
Rare disease drug, biologic and cell and gene therapy developers shaping regulatory and market access strategy; regulatory affairs leads navigating EMA orphan designation and small-cohort evidence packages; and patient advocacy groups, for whom Terrapinn offers a dedicated complimentary VIP pass track. Comparing autumn options? FDA's Rare Disease Framework Initiative public meeting runs the same week, FDA's earlier Patient Voice in Rare Disease Medical Product Development meeting covered adjacent ground, and the full events directory lists everything we have verified.
Frequently asked questions
When is World Orphan Drug Congress Europe 2026?
Pre-congress workshops run 26 October 2026, with the main congress and exhibition on 27-28 October 2026, at RAI Amsterdam.
Where is it held?
RAI Amsterdam (RAI Congress Centre), in Amsterdam, the Netherlands.
Is it in person or virtual?
In person. Every source reviewed describes a physical congress and exhibition; none states a virtual or hybrid attendance option.
What does registration cost?
Terrapinn offers complimentary VIP passes to specific groups (public health, charities, patient advocacy, investors, academia), each applied for separately, plus a paid workshop upgrade. No standard delegate ticket price was published on a Terrapinn-owned page as of 18 October 2026 — check the organizer's registration page for current rates.
Who should attend?
Rare disease drug developers, regulatory affairs and market access leads, and patient advocacy groups working across cell and gene therapy, genetic testing and orphan drug regulatory strategy.
Sources & further reading
- Terrapinn. World Orphan Drug Congress Europe 2026 — event home. terrapinn.com
- EATRIS. World Orphan Drug Congress Europe 2026. eatris.eu
- International Rare Diseases Research Consortium (IRDiRC). World Orphan Drug Congress Europe 2026. irdirc.org
Event details are published by the organizer and can change. This listing was verified via WebSearch corroboration of Terrapinn's own event page rather than a direct fetch, because this session's network egress could not reach terrapinn.com directly — confirm dates, venue and registration with Terrapinn before booking travel. Last verified 18 October 2026.
